After a night of increased pain, I woke to higher pain levels and a confusing mix of emotions to go with it. How could something that felt so promising the day before, now give cause for doubt? With a start such as this to the morning, the Neurophysiologist who worked with me in the US and has been supportive through the last years and months, sent a comment that couldn't have come at a more appropriate time in the journey. Jim Hagen wrote:
"I am so thrilled your travels and time so far have been positve. From your last post it appears you are at that point which can be thrilling and frightening at the same time. Feeling no paresthesia, but noticing you are doing things that
would have been next to impossible last month. You are in our thoughts and prayers constantly. There will still be challenges, maybe a day with increased pain, but I don't believe you've ever been closer to that light at the end of
the tunnel. Love from Denver, Jim Hagen."
You are right, Jim, this is both thriilling and frightening. The day today was a play between reduced pain sensations and the return of pain...Through this all, we pray for the patience to take each day's experience as it comes. Today I spent most of the day in bed, but it was richly punctuated with a visit of Koos de Vink ( a friend of the Vandenbergs from Taiwan) and a wonderful dinner at the table with alone with my wife. It was a gift for the day. Tomorrow evening I will try Program 2 which involves the use of a different combination of electrodes.
"I am so thrilled your travels and time so far have been positve. From your last post it appears you are at that point which can be thrilling and frightening at the same time. Feeling no paresthesia, but noticing you are doing things that
would have been next to impossible last month. You are in our thoughts and prayers constantly. There will still be challenges, maybe a day with increased pain, but I don't believe you've ever been closer to that light at the end of
the tunnel. Love from Denver, Jim Hagen."
You are right, Jim, this is both thriilling and frightening. The day today was a play between reduced pain sensations and the return of pain...Through this all, we pray for the patience to take each day's experience as it comes. Today I spent most of the day in bed, but it was richly punctuated with a visit of Koos de Vink ( a friend of the Vandenbergs from Taiwan) and a wonderful dinner at the table with alone with my wife. It was a gift for the day. Tomorrow evening I will try Program 2 which involves the use of a different combination of electrodes.
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